Status:
COMPLETED
Parenting Concerns in Patients With Cystic Fibrosis (MucoPar)
Lead Sponsor:
Assistance Publique - Hôpitaux de Paris
Collaborating Sponsors:
URC-CIC Paris Descartes Necker Cochin
Conditions:
Cystic Fibrosis
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The purpose of this study is to explore and collect the perceptions, expectations and needs of CF patients about parenting. This will be done in the context of several small groups of patients led by ...
Detailed Description
Life expectancy has improved significantly in cystic fibrosis in recent years. From paediatric disease, it has become a disease of the adult, with the emergence of new issues, such as becoming a paren...
Eligibility Criteria
Inclusion
- For patients
- Have cystic fibrosis
- Be a parent and raise or have raised at least one child
- Being followed in one of the two adult CF centers participating in the study
- For CF patients' spouses
- \- Live with the CF patient participating in the study
- For both CF patients and spouses
- Being an adult (at least 18 y.o.)
- Have a good level of French and good speaking skills
Exclusion
- For both CF patients and spouses
- Psychiatric pathology (borderline state, bipolarity and other psychotic disorders)
- Serious somatic disease not related to cystic fibrosis
Key Trial Info
Start Date :
September 25 2019
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
December 21 2020
Estimated Enrollment :
52 Patients enrolled
Trial Details
Trial ID
NCT04133246
Start Date
September 25 2019
End Date
December 21 2020
Last Update
November 20 2025
Active Locations (2)
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1
Cochin Hospital
Paris, Île-de-France Region, France, 75012
2
Foch Hospital
Suresnes, Île-de-France Region, France, 92150