Status:
RECRUITING
Registry of Ollier Disease and Maffucci Syndrome
Lead Sponsor:
Luca Sangiorgi
Conditions:
Ollier Disease
Maffucci Syndrome
Eligibility:
All Genders
Brief Summary
REM is a retrospective and prospective registry, finalized to care and research. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different...
Detailed Description
The traditional method of collecting patient information is often chaotic, inconvenient and sometimes even unsafe, particularly when dealing with rare diseases. In 2017, the need to simplify the diagn...
Eligibility Criteria
Inclusion
- All patients affected by Ollier Disease and Maffucci Syndrome
Exclusion
- Any condition unrelated to Ollier Disease and/or Maffucci Syndrome
Key Trial Info
Start Date :
January 16 2017
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
January 1 2032
Estimated Enrollment :
400 Patients enrolled
Trial Details
Trial ID
NCT04134572
Start Date
January 16 2017
End Date
January 1 2032
Last Update
November 20 2025
Active Locations (1)
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1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136