Status:
RECRUITING
Aftercare of Childhood Cancer Survivors in Switzerland
Lead Sponsor:
Kantonsspital Aarau
Collaborating Sponsors:
University Children's Hospital Basel
Luzerner Kantonsspital
Conditions:
Childhood Cancer
Survivorship
Eligibility:
All Genders
16+ years
Brief Summary
The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a pr...
Detailed Description
Background: Every year over 300 children and adolescents up to the age of 18 years are newly diagnosed with cancer in Switzerland. Survival after childhood cancer has increased substantially over the ...
Eligibility Criteria
Inclusion
- 5-year survivor of childhood cancer
- Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
- Age at diagnosis \<18 years
- Age at study ≥16 years
- At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
- Written informed consent
Exclusion
- Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
- \<5 years after therapy of a relapse or palliative situation
- Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
- Insufficient knowledge of the German language
- Informed consent form not signed
Key Trial Info
Start Date :
February 12 2019
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
August 1 2030
Estimated Enrollment :
140 Patients enrolled
Trial Details
Trial ID
NCT04284189
Start Date
February 12 2019
End Date
August 1 2030
Last Update
August 17 2022
Active Locations (3)
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1
Division of Oncology - Hematology, Department of Pediatrics, Kantonsspital Aarau
Aarau, Switzerland
2
Division of Oncology/ Hematology, University Children's Hospital Basel
Basel, Switzerland
3
Division of Oncology/ Hematology, Department of Pediatrics, Kantonsspital Lucerne
Lucerne, Switzerland