Status:

COMPLETED

Multicentric Prospective Study to Screen Inborn Errors of Metabolism in Non-immune Hydrops (NIH) Fetalis by Massively Parallel Sequencing

Lead Sponsor:

Hospices Civils de Lyon

Conditions:

Non-Immune Hydrops Fetalis

Eligibility:

FEMALE

18+ years

Phase:

NA

Brief Summary

A fetal hydrops, also called a fetal anasarca, is the buildup of fluid in the serosa and / or fetal subcutaneous tissue. The diagnosis is made by ultrasound, possibly from the first trimester of pregn...

Eligibility Criteria

Inclusion

  • patient\> 18 years old
  • Single Pregnancy
  • Progressive pregnancy greater than 11 weeks: Fetal death in utero in a fetus previously known to be a carrier of non Immun Hydrops (NIH) is not an exclusion criterion.
  • Presence of an ultrasound defined as follows and confirmed by a multidisciplinary prenatal diagnostic center CPDPN:
  • Before 14 weeks: Generalized subcutaneous edema descending to the abdomen, associated or not with peri-visceral effusion
  • After 14 weeks: presence of at least 2 of the following criteria: ascites, pleural effusion, pericardial effusion, subcutaneous edema, placental edema, hydramnios.
  • Persistent hygroma after 14 weeks of amenorrhea
  • Persistent isolated perivisceral effusions without etiologies found
  • Patient having an invasive diagnostic sample (amniocentesis)
  • Social insured in France
  • Patient who signed the informed consent of the study

Exclusion

  • NIH whose diagnosis is known and confirmed as non-metabolic by a CPDPN
  • Non-progressive pregnancy with Fetal Death in utero with normal previous ultrasound monitoring
  • Refusal of invasive diagnostic sampling
  • Patient under legal protection measure

Key Trial Info

Start Date :

April 12 2021

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

April 12 2024

Estimated Enrollment :

71 Patients enrolled

Trial Details

Trial ID

NCT04308603

Start Date

April 12 2021

End Date

April 12 2024

Last Update

November 8 2024

Active Locations (17)

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Page 1 of 5 (17 locations)

1

CHU Besançon

Besançon, France, 25000 Besancon

2

CHU Pellegrin

Bordeaux, France, 33076

3

Hôpital Femme Mère Enfant

Bron, France, 69500

4

Hôpital d'Estaing

Clermont-Ferrand, France, 63003