Status:

TERMINATED

Couple and Spouse Caregiver in Huntington's Disease

Lead Sponsor:

University Hospital, Lille

Conditions:

Huntington Disease

Eligibility:

All Genders

30-70 years

Brief Summary

The objectives are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.

Eligibility Criteria

Inclusion

  • For patient :
  • HD, CAG \> 36, motor UHDRS \> 5
  • Being able to communicate with the investigator
  • For both spouses :
  • Living together since at least 5 years
  • 30 to 60 years old

Exclusion

  • For patient :
  • \- Other chronic neurologic disorder
  • For both spouses :
  • Psychiatric disease
  • Unable to participate, incl read, understand and sign the informed consent

Key Trial Info

Start Date :

January 13 2020

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

January 12 2025

Estimated Enrollment :

48 Patients enrolled

Trial Details

Trial ID

NCT04394767

Start Date

January 13 2020

End Date

January 12 2025

Last Update

May 16 2025

Active Locations (1)

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Hôpital Roger Salengro, CHU Lille

Lille, France, 59037