Status:

RECRUITING

Rheumatology Patient Registry and Biorepository

Lead Sponsor:

Yale University

Collaborating Sponsors:

Rheumatology Research Foundation

Conditions:

Rheumatic Diseases

Adult Onset Still Disease

Eligibility:

All Genders

18-99 years

Brief Summary

To facilitate clinical, basic science, and translational research projects involving the study of rheumatic diseases.

Detailed Description

A rheumatology biorepository will be created to permit comparative analyses between the rheumatic diseases in order to increase the understanding of disease pathogenesis. Patients seen at Yale clinics...

Eligibility Criteria

Inclusion

  • Inclusion Criteria for Rheumatology Patients:
  • Patients ≥18 years old with a diagnosis of a rheumatic autoimmune disease including, but not limited to: adult onset Still's disease, ankylosing spondylitis, antiphospholipid syndrome, Behcet's disease, dermatomyositis, giant cell arteritis, mixed connective tissue disease, polymyalgia rheumatica, polymyositis, psoriatic arthritis, reactive arthritis, rheumatoid arthritis, sarcoidosis, scleroderma, Sjogren's syndrome, systemic lupus erythematosus, undifferentiated connective tissue disease and vasculitis.
  • Receiving clinical care at Yale Rheumatology clinics
  • Exclusion Criteria for Rheumatology Patients:
  • Unable to provide informed consent
  • No patients will be excluded based on gender or ethnicity or pregnancy status.
  • Women who are currently pregnant will need to wait to donate a skin biopsy until after they deliver.
  • Patients allergic to lidocaine or epinephrine or have a history of impaired wound healing will not be able to donate a skin biopsy.
  • Inclusion Criteria for Healthy Volunteers:
  • Age ≥ 18 years old
  • No chronic skin conditions
  • No diagnosis of a rheumatic autoimmune disease (e.g., lupus, rheumatoid arthritis)
  • Normal BMI
  • Exclusion Criteria for Healthy Volunteers:
  • Unable to provide informed consent.
  • Currently pregnant or nursing unless the study goal is to study pregnant or nursing woman.
  • Allergies to lidocaine or epinephrine (skin biopsies).
  • A history of impaired wound healing (skin biopsies).

Exclusion

    Key Trial Info

    Start Date :

    August 4 2020

    Trial Type :

    OBSERVATIONAL

    Allocation :

    ESTIMATED

    End Date :

    June 1 2030

    Estimated Enrollment :

    5000 Patients enrolled

    Trial Details

    Trial ID

    NCT04402086

    Start Date

    August 4 2020

    End Date

    June 1 2030

    Last Update

    March 6 2025

    Active Locations (1)

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    Yale New Haven Hospital

    New Haven, Connecticut, United States, 06510