Status:
UNKNOWN
Skills of Home Helpers for a Better Quality of Life for Adults With Huntington's Disease Living at Home
Lead Sponsor:
University Hospital, Angers
Conditions:
Quality of Life
Eligibility:
All Genders
18+ years
Brief Summary
Huntington's disease often brings together 3 types of symptoms at one time or another of the disease during its evolution: motor, cognitive and psychiatric. Management requires comprehensive and multi...
Eligibility Criteria
Inclusion
- Selection Criteria:
- Patient group :
- Genetic diagnosis of Huntington's disease
- Symptomatic patient
- Patient living at home
- Person able to carry out the interviews provided for in the study
- Caregiver group :
- Person, defined within the meaning of the CNSA (National Solidarity Fund for Autonomy) as a natural caregiver, not concerned himself by the risk of developing the disease
- person able to carry out the interviews provided for in the study
- Home Helper group :
- \- Professionals working at home with Huntington's disease patients employed by home help service providers.
Exclusion
Key Trial Info
Start Date :
June 1 2020
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 1 2022
Estimated Enrollment :
90 Patients enrolled
Trial Details
Trial ID
NCT04411238
Start Date
June 1 2020
End Date
June 1 2022
Last Update
June 2 2020
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