Status:
COMPLETED
PPA Tele-Savvy: A Pilot Study of an Online Intervention for Caregivers of Persons Living With PPA
Lead Sponsor:
Northwestern University
Collaborating Sponsors:
Emory University
Conditions:
Primary Progressive Aphasia
Caregiver Burnout
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The primary goal of this pilot project is to adapt an evidence-informed on-line psychoeducation program (Tele-Savvy) to address the unique challenges facing informal caregivers of those living with PP...
Detailed Description
The primary goal of this pilot project is to develop an evidence-informed on-line psychoeducation program (Tele-Savvy) based on the well-established Savvy Caregiver program to address the unique chall...
Eligibility Criteria
Inclusion
- Aim 1:
- Informal (family or friends) caregivers of persons living with or deceased from PPA.
- Age 18 or over Providing or have provided at least 2 hours per day of unpaid assistance, on average, for a person in the early-middle stage of PPA.
- Must have access to a computer with adequate internet connection. Able to use a videoconferencing platform and receive email. Participants must be able to read, speak and understand English and have no uncorrectable vision or hearing deficits that might impede participation.
- Aim 2:
- Informal (family or friends) caregivers of persons living with PPA. Age 18 or over Providing at least 2 hours per day of unpaid assistance, on average, for a person in the early-middle stage of PPA.
- Must have access to a computer with adequate internet connection. Able to use a videoconferencing platform and receive email. Must be able to read, speak and understand English and have no uncorrectable vision or hearing deficits that might impede participation.
Exclusion
- \-
Key Trial Info
Start Date :
July 30 2020
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
September 19 2023
Estimated Enrollment :
29 Patients enrolled
Trial Details
Trial ID
NCT04412083
Start Date
July 30 2020
End Date
September 19 2023
Last Update
May 8 2024
Active Locations (1)
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1
Mesulam Center for Cognitive Neurology and Alzheimer's Disease, Northwestern University
Chicago, Illinois, United States, 60611