Status:
COMPLETED
The Responses Study
Lead Sponsor:
King's College London
Collaborating Sponsors:
Princess Alice Hospice
Conditions:
Advance Care Planning
Eligibility:
All Genders
18-85 years
Brief Summary
The issue Patients who are living with a life-limiting and progressive illness are often encouraged by the healthcare professionals looking after them to undergo a process called Advance Care Planning...
Eligibility Criteria
Inclusion
- Aged 18 and over
- A palliative care diagnosis confirmed by a referring healthcare professional, i.e. a diagnosis of a life-threatening or life-limiting illness
- Have completed one or multiple ACP discussions as defined below, at any time prior to referral to study, with a healthcare professional
- Sufficient cognitive capacity to provide informed consent and complete an interview
- For the purposes of recruitment for this study, ACP is defined as:
- Any significant discussion with a healthcare professional where patients have discussed their values, goals or preferences for future care. These can include discussions about wishes for further disease-modifying treatment, wishes for intensity of general medical care, preferred places of care and death, discussions around resuscitation and transfer to hospital, and completion of advanced directives. Healthcare professionals can include any doctor, nurse or allied health professional.
Exclusion
- Any patient the researcher has ever met or cared for in a clinical capacity, or knows in any other capacity
- Any patient who has only had ACP discussions with a volunteer (trained or untrained) or non-healthcare professional
- Inability to provide informed consent
- Any patient deemed by the referring healthcare professional to be potentially too unwell or frail to undertake an interview
Key Trial Info
Start Date :
March 2 2022
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
February 28 2023
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT04445896
Start Date
March 2 2022
End Date
February 28 2023
Last Update
March 3 2023
Active Locations (1)
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1
Princess Alice Hospice
Esher, Surrey, United Kingdom, KT10 8NA