Status:
RECRUITING
GROWing Up With Rare GENEtic Syndromes
Lead Sponsor:
dr. Laura C. G. de Graaff-Herder
Conditions:
Prader-Willi Syndrome
PWS-like Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
Introduction Rare complex syndromes Patients with complex genetic syndromes, by definition, have combined medical problems affecting multiple organ systems, and intellectual disability is often part o...
Eligibility Criteria
Inclusion
- Patients with rare syndromes or rare congenital diseases visiting the multidisciplinary outpatient clinic for patients with rare diseases at the department of endocrinology, internal medicine, Erasmus Medical Center.
Exclusion
- None
Key Trial Info
Start Date :
October 1 2018
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
January 1 2030
Estimated Enrollment :
600 Patients enrolled
Trial Details
Trial ID
NCT04463316
Start Date
October 1 2018
End Date
January 1 2030
Last Update
September 6 2023
Active Locations (1)
Enter a location and click search to find clinical trials sorted by distance.
1
Erasmus Medical Center
Rotterdam, South Holland, Netherlands, 3015 GD