Status:
UNKNOWN
Family Impact of Polyhandicap: a Mixed Methodological Approach
Lead Sponsor:
Assistance Publique Hopitaux De Marseille
Conditions:
Polyhandicap
Eligibility:
All Genders
8-35 years
Brief Summary
Polyhandicap (PLH) is a complex disability condition corresponding to a chronic affliction occurring in an immature brain, leading to the combination of profound mental retardation and serious motor d...
Eligibility Criteria
Inclusion
- Familial caregivers: member of a family of a polyhandicapped person aged from 8 to 35 years old
- Patients: with severe polyhandicap defined by the combination of motor deficiency and intellectual impairment associated with everyday life dependence, restricted mobility and age at onset of cerebral lesion below 3 years old
- Written consent signed by caregivers for participation
Exclusion
- caregivers refusing to participate
Key Trial Info
Start Date :
June 1 2020
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 1 2022
Estimated Enrollment :
260 Patients enrolled
Trial Details
Trial ID
NCT04492761
Start Date
June 1 2020
End Date
June 1 2022
Last Update
July 30 2020
Active Locations (1)
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1
Assistance Publique Hôpiatuix de Marseille
Marseille, France, 13354