Status:

UNKNOWN

An Innovative Supportive Care Model for Dementia and Traumatic Brain Injury

Lead Sponsor:

University of Virginia

Collaborating Sponsors:

Congressionally Directed Medical Research Programs

Conditions:

Dementia, Mixed

Dementia Mild

Eligibility:

All Genders

21+ years

Phase:

NA

Brief Summary

There are an increasing number of people in the U.S. with Alzheimer's disease and other dementias. Traumatic brain injuries (TBIs) are also common among both civilians and military personnel, and TBIs...

Detailed Description

More than 150,000 Virginians live with dementia. Most persons with dementia (PWD) are cared for by an unpaid family caregiver. These caregivers' provision of daily assistance to PWD is a critical part...

Eligibility Criteria

Inclusion

  • Caregiver
  • Must be at least 18 years of age
  • Self-identified primary caregiver for a community-dwelling patient with dementia (PWD)
  • Must be an unpaid caregiver
  • Basic spoken and written English language skills
  • Caregiver

Exclusion

  • Unwilling or unable to fulfill the requirements of the study
  • Any condition which would make the caregiver, in the opinion of the investigator, unsuitable for the study
  • No access to high-speed/broadband internet service capable of operating study teleconferencing software available
  • Patient with Dementia Inclusion Criteria:
  • aged 55 years or older
  • Diagnosis of mild cognitive impairment (MCI) or Alzheimer's disease and related dementias (ADRD)
  • Mild to moderate dementia, including mixed dementia
  • 0-1 appointments in the multi-disciplinary long-term University of Virginia (UVA) Memory Disorder follow-up clinic (MDC)
  • Patient with Dementia and TBI Inclusion Criteria:
  • aged 21 years or older
  • Diagnosis of major neurocognitive disorder (MND), mild neurocognitive disorder, or Alzheimer's disease and related dementias (ADRD)
  • Diagnosis of mild to moderate dementia, including mixed dementia
  • Diagnosed with mild complicated, moderate or sever traumatic brain injury (TBI)
  • TBI event at or after the age of brain maturity, ≥25 years of age
  • No exclusion criteria for patients with dementia and/or traumatic brain injury.

Key Trial Info

Start Date :

March 3 2021

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

September 1 2025

Estimated Enrollment :

171 Patients enrolled

Trial Details

Trial ID

NCT04495686

Start Date

March 3 2021

End Date

September 1 2025

Last Update

November 29 2023

Active Locations (1)

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1

University of Virginia

Charlottesville, Virginia, United States, 22908