Status:
COMPLETED
A Study Aimed to Assess the Needs of Subjects With Sickle Cell Disease and Healthcare Professionals Managing Sickle Cell Disease Patients in Selected Nigerian Centres
Lead Sponsor:
Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus
Collaborating Sponsors:
Barau Dikko Teaching Hospital
Conditions:
Sickle Cell Disease
Eligibility:
All Genders
18+ years
Brief Summary
This pilot research is aimed to assess the needs of patients and health workers involved in Sickle Cell Disease (SCD) management in Nigeria. To achieve this, a questionnaire will be administered to SC...
Detailed Description
The primary objective of this study is to understand the needs of SCD patients and health workers involved in SCD management, with particular reference to the disease management in the clinical centre...
Eligibility Criteria
Inclusion
- The following inclusion criteria apply for patients/parents:
- Aged ≥ 18
- Have SCD diagnosis or having a child with a SCD diagnosis
- Attending the centre from at least 6 months
- Nigerian nationality
- Informed Consent signed
- The following inclusion criteria will apply for healthcare professionals:
- Working in a SCD clinic
- At least 5 years of experience with SCD patients
- Informed Consent signed
- The following exclusion criteria apply for all participants:
- Informed consent form withdrawal
- Illiterate subjects
- Any psychiatric conditions impairing the participation in this study.
Exclusion
Key Trial Info
Start Date :
August 11 2020
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
November 11 2020
Estimated Enrollment :
192 Patients enrolled
Trial Details
Trial ID
NCT04505969
Start Date
August 11 2020
End Date
November 11 2020
Last Update
May 10 2024
Active Locations (4)
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1
National Hospital Abuja
Abuja, Nigeria
2
Barau Dikko Teaching Hospital, Kaduna State University
Kaduna, Nigeria
3
Federal Medical Centre Katsina
Katsina, Nigeria
4
Ahmadu Bello University Teaching Hospital Zaria
Zaria, Nigeria