Status:

COMPLETED

GEnetic Counseling Through Virtual Visits in Parkinson's Disease

Lead Sponsor:

University of Pennsylvania

Conditions:

Parkinson Disease

Eligibility:

All Genders

21+ years

Phase:

NA

Brief Summary

The research study is being conducted to compare methods of virtual genetic counseling for people with Parkinson's disease.

Detailed Description

This research will evaluate different virtual methods of pre-test genetic counseling and post-test genetic results disclosure in people with Parkinson's disease. Participants will be randomized to rec...

Eligibility Criteria

Inclusion

  • Provision of signed and dated informed consent form
  • Stated willingness to have clinical confirmation genetic testing, and comply with all study procedures and availability for the duration of the study
  • Male or female, over the age of 21.
  • English Speaking

Exclusion

  • Prior genetic counseling and/or clinical testing specifically for Parkinson's disease
  • Montreal Cognitive Assessment (MoCA) \< 21, or a prior diagnosis of dementia during the screening phase

Key Trial Info

Start Date :

January 1 2021

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

November 1 2023

Estimated Enrollment :

370 Patients enrolled

Trial Details

Trial ID

NCT04527146

Start Date

January 1 2021

End Date

November 1 2023

Last Update

March 11 2025

Active Locations (1)

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1

University of Pennsylvania Parkinsons Disease and Movement Disorders Center

Philadelphia, Pennsylvania, United States, 19107