Status:
UNKNOWN
Quality of Life of Children/Adolescents in Palliative Care Settings
Lead Sponsor:
University Hospital, Toulouse
Conditions:
Palliative Care
Eligibility:
All Genders
1-18 years
Brief Summary
Investigators will propose to each family monitored by the teams to participate in the study (children between 1 and 18 years old, families understanding and speaking a minimum of French). Semi-direc...
Detailed Description
An information letter will be distributed to the children and parents and their non opposition to their participation will be sought (or assent for the child via a written document adapted to the age)...
Eligibility Criteria
Inclusion
- Children/adolescents aged 1 to 18 years with a serious illness and requiring follow-up by a regional pediatric palliative care resource team and/or temporarily hospitalized.
- Having given his non-opposition to his participation.
- A minor of whom at least one of the two holders of parental authority has given his or her consent to the participation of their child.
- Child of whom one of the two holders of parental authority has himself agreed to participate in the study.
Exclusion
- Children/adolescents at the end of life (imminent death foreseeable).
- Children/adolescents and their parents who do not understand French.
- Child or parent under legal protection (guardianship, curatorship).
Key Trial Info
Start Date :
April 15 2020
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
November 15 2022
Estimated Enrollment :
320 Patients enrolled
Trial Details
Trial ID
NCT04527692
Start Date
April 15 2020
End Date
November 15 2022
Last Update
August 26 2020
Active Locations (1)
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1
Agnès SUC
Toulouse, France, 31059