Status:

RECRUITING

The Impact of Glomerular Disorders on Bone Quality and Strength

Lead Sponsor:

Columbia University

Collaborating Sponsors:

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Conditions:

Glomerular Disease

Bone Diseases, Metabolic

Eligibility:

All Genders

5-55 years

Brief Summary

The primary objectives of this study are to: (1) determine the impact of glomerular disease on bone strength and (2) investigate the pathophysiologic underpinnings of impaired bone strength in glomeru...

Detailed Description

Children and adults with glomerular disease have unique and potentially modifiable risk factors for compromised bone health, but our current understanding of skeletal fragility in glomerular disease i...

Eligibility Criteria

Inclusion

  • Inclusion Criteria for participants with glomerular disease:
  • CureGN participant or CureGN Eligible
  • CureGN eligible is defined as having a diagnosis of Glomerulonephropathy (GN). Patients would otherwise be enrolled in be in CureGN study, except for lacking a minor entry criteria, such as:
  • First diagnostic kidney biopsy within 5 years of CureGN study enrollment
  • Access to first kidney biopsy report and/or slides or not being interested in study participation.
  • Males or females 5 to 55 years (premenopausal for women)
  • Females must have a negative urine/serum pregnancy test
  • Stable doses of nutritional vitamin D or active vitamin D therapy for at least 3 months before enrollment ((if on either form of Vitamin D)
  • Consent/Parental/guardian permission (informed consent) and if appropriate, child assent
  • Exclusion Criteria for all participants
  • Chronic Dialysis
  • Solid organ transplantation
  • Lower extremity amputations or non-ambulatory
  • Malignancy requiring chemotherapy or metastatic to bone
  • Metabolic bone disease (e.g., Paget's disease, primary hyperparathyroidism)
  • Endocrinopathy (current hyperthyroidism or untreated hypothyroidism, Cushing's syndrome)
  • Medical diseases (end stage liver disease, heart or lung disease, intestinal malabsorption)
  • Those treated with bisphosphonates, teriparatide, calcitonin, selective estrogen receptor modulators, estrogen, or phenytoin in the past 12 months
  • Previous bilateral wrist and tibia fractures
  • Pregnant or lactating females
  • Parents/guardians or participants who, in the opinion of the Investigator, may be non-compliant with study schedules or procedures.

Exclusion

    Key Trial Info

    Start Date :

    June 14 2019

    Trial Type :

    OBSERVATIONAL

    Allocation :

    ESTIMATED

    End Date :

    December 1 2024

    Estimated Enrollment :

    270 Patients enrolled

    Trial Details

    Trial ID

    NCT04528446

    Start Date

    June 14 2019

    End Date

    December 1 2024

    Last Update

    July 1 2024

    Active Locations (2)

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    Page 1 of 1 (2 locations)

    1

    Columbia University Irving Medical Center

    New York, New York, United States, 10032

    2

    The Children's Hospital of Philadelphia

    Philadelphia, Pennsylvania, United States, 19104