Status:
UNKNOWN
Education Program in Myasthenia
Lead Sponsor:
University Hospital, Strasbourg, France
Conditions:
Auto-immune Myasthenia
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
Patient therapeutic education (PTE) has become "a must" in the modern management of chronic diseases. Its main objective is to improve compliance with treatment and the application of preventive measu...
Eligibility Criteria
Inclusion
- Patient with generalized autoimmune myasthenia with Acetylcholine Receptor Antibodies (AChR Ab) or with antibodies to the muscle-specific receptor tyrosine kinase (MuSK Ab)
- Patient agreeing to participate in the therapeutic education program
- Signing consent
- Subject affiliated with a health insurance social protection regiment
Exclusion
- Patients without serological confirmation of myasthenia or pure ocular form
- Patient with cognitive impairment or behavioral problems that, in the investigator's opinion, will compromise their ability to comply with study procedures
- Refusal of the patient to participate in the study
- Patient who has already benefited from the therapeutic education program in myasthenia
- Age \< 18 y.o.
- Subject under safeguarding justice
- Subject under guardianship or under curatorship
Key Trial Info
Start Date :
January 22 2021
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
May 22 2025
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT04714658
Start Date
January 22 2021
End Date
May 22 2025
Last Update
January 19 2021
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