Status:
COMPLETED
Determining Feasibility and Acceptability of Sharing Video Recordings With Patients With ALS and Caregivers
Lead Sponsor:
Dartmouth-Hitchcock Medical Center
Collaborating Sponsors:
The Diamond Endowment Project
Conditions:
Amyotrophic Lateral Sclerosis
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
Our objective in the proposed project is to: (a) operationalize and determine the feasibility and acceptability of a trial where clinic multi-disciplinary clinic (MDC) visits are audio/video recorded ...
Detailed Description
We will conduct a single-site, two-arm, parallel group, patient-randomized, controlled, pilot trial with 3-month follow up, to determine the feasibility, acceptability, and potential effectiveness of ...
Eligibility Criteria
Inclusion
- diagnosed and primarily treated for Amyotrophic Lateral Sclerosis (ALS)
- Aged 18 years or greater
- Can communicate in English (verbally, on a computer, or with assistance)
- Have email
- Have internet access
- Willing to have their multidisciplinary clinic visit audio/video recorded for a 3 month period
Exclusion
- Those without the capacity to provide consent, either themselves or via proxy
Key Trial Info
Start Date :
May 12 2021
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
June 9 2022
Estimated Enrollment :
79 Patients enrolled
Trial Details
Trial ID
NCT04719403
Start Date
May 12 2021
End Date
June 9 2022
Last Update
February 21 2023
Active Locations (1)
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1
Dartmouth-Hitchcock Medical Center
Lebanon, New Hampshire, United States, 03766