Status:
COMPLETED
Living With Marfan Syndrome and Your Aorta
Lead Sponsor:
Barts & The London NHS Trust
Collaborating Sponsors:
Liverpool Heart and Chest Hospital NHS Foundation Trust
Aortic Dissection Awareness UK & Ireland.
Conditions:
Marfan Syndrome
Marfan Syndrome Cardiovascular Manifestations
Eligibility:
All Genders
18-120 years
Brief Summary
Marfan Syndrome (MFS) is a genetic disease affecting the eyes, skeleton, heart and arteries. Despite MFS affecting multiple organ systems, cardiovascular manifestations are the most serious and life t...
Detailed Description
Marfan Syndrome (MFS) is a rare autosomal-dominant connective tissue disorder with pleiotropic manifestations primarily affecting the skeletal, ocular, and cardiovascular systems. Despite MFS affectin...
Eligibility Criteria
Inclusion
- \>/= 18 years old;
- have validated diagnosis of MFS (using revised Ghent criteria);
- diagnosed with aorto-vascular manifestations
Exclusion
- \<18years old
- Unable or unwilling to give written informed consent.
- Inability to understand written and/or verbal English
Key Trial Info
Start Date :
October 5 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
August 22 2023
Estimated Enrollment :
75 Patients enrolled
Trial Details
Trial ID
NCT04776668
Start Date
October 5 2021
End Date
August 22 2023
Last Update
April 10 2024
Active Locations (1)
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1
St Bartholomews Hospital
London, United Kingdom, EC1A 7BE