Status:
NOT_YET_RECRUITING
Development of a Predictive Model for the Risk of Metastatic Disease in PPGLs, a Retrospective Cohort Study
Lead Sponsor:
Rigshospitalet, Denmark
Conditions:
Paraganglioma
Pheochromocytoma
Eligibility:
All Genders
Up to 120 years
Brief Summary
Phaeochromocytomas and paragangliomas (PPGLs) are tumours of the adrenal medulla and extra-adrenal sympathetic nervous system, some which can become metastatic. It is a very rare disease and the tumou...
Detailed Description
Phaeochromocytomas and paragangliomas (PPGLs) are tumours of the adrenal medulla and extra-adrenal sympathetic nervous system, respectively, that often secrete catecholamines(1). The tumours are deriv...
Eligibility Criteria
Inclusion
- All Danish patients diagnosed with PPGLs or genetic variants that predispose to PPGLs since 1996 will be included.
Exclusion
- None from the initial data collection. If there are no tumour tissue or blood samples from a patient in the biobanks they will subsequently be excluded.
Key Trial Info
Start Date :
October 1 2023
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
September 30 2027
Estimated Enrollment :
400 Patients enrolled
Trial Details
Trial ID
NCT04788927
Start Date
October 1 2023
End Date
September 30 2027
Last Update
April 7 2023
Active Locations (2)
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1
Rigshospitalet
Copenhagen, Denmark, 2100
2
National University Hospital, Department of Medical Endocrinology
Copenhagen, Denmark, DK-2100