Status:

NOT_YET_RECRUITING

Alpha/Beta T-cell Depleted Blood-forming Stem Cell Transplant From Related or Unrelated Donors for Blood Diseases in Children and Young Adults

Lead Sponsor:

University of Wisconsin, Madison

Conditions:

Blood Disease

Eligibility:

All Genders

3-40 years

Phase:

PHASE1

Brief Summary

This single institution, phase I clinical trial will determine the safety and feasibility of employing T-cell receptor (TCR) αβ+ and CD19+ (Cluster of Differentiation ) depleted hematopoietic stem cel...

Eligibility Criteria

Inclusion

  • No Human leukocyte antigen (HLA) identical sibling available AND
  • NO HLA matched unrelated donor available OR urgent need of HSCT precludes time necessary to search for suitable HLA matched unrelated donor AND
  • Haploidentical donor OR closely matched unrelated donor available and willing to undergo mobilization and apheresis
  • If subject has genetically confirmed inherited bone marrow failure, related donor must be evaluated for this disorder and testing must be negative.
  • If subject has sickle cell disease, donor may have only sickle cell trait
  • Patient must be diagnosed with one of the following diseases or disorders:
  • Hemoglobinopathies
  • Sickle Cell Disease for patients ≤ 21 years of age for whom hydroxyurea has been trialed for at least six months, and failed
  • Thalassemia Major for patients ≤ 21 years of age
  • Acquired Bone Marrow Failure Syndromes
  • Paroxysmal Nocturnal Hemoglobinuria with bone marrow failure
  • Myelodysplastic Syndromes (lower risk)
  • Inherited Bone Marrow Failure Syndromes
  • Fanconi Anemia
  • Diamond Blackfan Anemia
  • Dyskeratosis Congenita and related telomere disorders
  • Congenital Thrombocytopenia Syndromes
  • Severe Congenital Neutropenia
  • Shwachman-Diamond Syndrome
  • Age ≤ 40 years (except patients with hemoglobinopathies)
  • Life Expectancy ≥ 3 months
  • Karnofsky (patients \> 16 years)/Lansky (patients ≤ 16 years) index ≥ 60
  • Organ Function Requirements
  • Renal Function
  • Creatinine clearance or radioisotope Glomerular Filtration Rate (GFR) greater than or equal to 60 ml/min/1.73m\^2
  • Liver Function
  • Total bilirubin \< 3 mg/dL
  • Alanine aminotransferase (ALT)/ Serum glutamic-pyruvic transaminase; synonymous with ALT (SCPT) ≤ 3 x Upper Limit of Normal(ULN) for age
  • Cardiac Function
  • Ejection fraction of \> 40% by Multiple gated acquisition scan (MUGA) or echocardiogram
  • Pulmonary Function
  • No evidence of dyspnea at rest
  • No supplemental oxygen requirement
  • If measured, carbon monoxide diffusion capacity (DLCO) \> 50%
  • Willing to use effective birth control method if patient is of reproductive potential
  • Informed consent obtained (patient or legal representative)

Exclusion

  • Pregnant
  • HIV infection
  • Uncontrolled, serious active infection at screening
  • Significant serious intercurrent illnesses
  • Enrollment in any other treatment study that would interfere with the endpoints of this study according to judgement of Principal Investigator(or PI designee).

Key Trial Info

Start Date :

January 1 2026

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

February 1 2030

Estimated Enrollment :

12 Patients enrolled

Trial Details

Trial ID

NCT04806347

Start Date

January 1 2026

End Date

February 1 2030

Last Update

November 24 2025

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