Status:

COMPLETED

Study of Efficacy and Safety of Twice Daily Oral Iptacopan (LNP023) in Adult PNH Patients Who Are Naive to Complement Inhibitor Therapy

Lead Sponsor:

Novartis Pharmaceuticals

Conditions:

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Eligibility:

All Genders

18+ years

Phase:

PHASE3

Brief Summary

The purpose of this Phase 3 study was to determine whether iptacopan is efficacious and safe for the treatment of Paroxysmal nocturnal hemoglobinuria (PNH) patients who were naïve to complement inhibi...

Detailed Description

This study was a multicenter, single-arm, open-label trial which was comprised of 8 weeks screening period, 24-week core treatment period and 24-week extension treatment period. Eligible PNH patients...

Eligibility Criteria

Inclusion

  • Male and female participants ≥ 18 years of age with a diagnosis of PNH confirmed by high-sensitivity flow cytometry with RBCs and WBCs clone size ≥ 10%
  • Mean hemoglobin level \<10 g/dL
  • LDH \> 1.5 x Upper Limit of Normal (ULN)
  • Vaccination against Neisseria meningitidis infection is required prior to the start of study treatment
  • If not received previously, vaccination against Streptococcus pneumoniae and Haemophilus influenzae infections should be given

Exclusion

  • Prior treatment with a complement inhibitor, including anti-C5 antibody
  • Known or suspected hereditary complement deficiency
  • History of hematopoietic stem cell transplantation
  • Patients with laboratory evidence of bone marrow failure (reticulocytes \<100x109/L; platelets \<30x109/L; neutrophils \<0.5x109/L).
  • Active systemic bacterial, viral (incl. COVID-19)or fungal infection within 14 days prior to study drug administration.
  • History of recurrent invasive infections caused by encapsulated organisms, e.g. meningococcus or pneumococcus.
  • Major concurrent comorbidities including but not limited to severe kidney disease (e.g., dialysis), advanced cardiac disease (e.g., NYHA class IV heart failure), severe pulmonary disease (e.g., severe pulmonary hypertension (WHO class IV)), or hepatic disease (e.g., active hepatitis) that in the opinion of the investigator precludes participant's participation in the study.

Key Trial Info

Start Date :

July 19 2021

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

April 18 2023

Estimated Enrollment :

40 Patients enrolled

Trial Details

Trial ID

NCT04820530

Start Date

July 19 2021

End Date

April 18 2023

Last Update

October 9 2024

Active Locations (12)

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Page 1 of 3 (12 locations)

1

Novartis Investigative Site

Beijing, China, 100730

2

Novartis Investigative Site

Tianjin, China, 300020

3

Novartis Investigative Site

Tianjin, China, 300052

4

Novartis Investigative Site

Paris, France, 75475