Status:

COMPLETED

Breathlessness Assessment in Adult Patients With Myotonic Dystrophy Type 1

Lead Sponsor:

CHU de Reims

Conditions:

Myotonic Dystrophy Type 1 (DM1)

Eligibility:

All Genders

18+ years

Brief Summary

Myotonic dystrophy type 1 (DM1) is one of the most common neuromuscular diseases in adults. As respiratory dysfunction is the most common cause of death in patients with DM1, a respiratory disease pro...

Eligibility Criteria

Inclusion

  • patient with myotonic dystrophy type 1 confirmed by genetic analysis
  • with an age older than 18 years

Exclusion

  • an ongoing or recent (i.e. within the last 4 weeks prior to study recruitment) medical condition, including pulmonary exacerbations
  • patient already under non-invasive mechanical ventilation

Key Trial Info

Start Date :

July 3 2020

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

June 14 2022

Estimated Enrollment :

34 Patients enrolled

Trial Details

Trial ID

NCT04835298

Start Date

July 3 2020

End Date

June 14 2022

Last Update

June 15 2022

Active Locations (1)

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1

Chu Reims

Reims, France, 51092