Status:
RECRUITING
ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
Lead Sponsor:
Alnylam Pharmaceuticals
Conditions:
Acute Hepatic Porphyria
Eligibility:
All Genders
12+ years
Brief Summary
This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effec...
Eligibility Criteria
Inclusion
- Documented diagnosis of AHP, per physician's determination
Exclusion
- Currently enrolled in a clinical trial for any investigational agent
Key Trial Info
Start Date :
April 26 2021
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
April 1 2027
Estimated Enrollment :
150 Patients enrolled
Trial Details
Trial ID
NCT04883905
Start Date
April 26 2021
End Date
April 1 2027
Last Update
December 19 2025
Active Locations (29)
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1
Clinical Trial Site
Birmingham, Alabama, United States, 35233
2
Clinical Trial Site
Gilbert, Arizona, United States, 85234
3
Clinical Trial Site
San Francisco, California, United States, 90074
4
Clinical Trial Site
Baltimore, Maryland, United States, 21205