Status:

COMPLETED

Real-life Data of Constitutional Von Willebrand Disease in Western France

Lead Sponsor:

Nantes University Hospital

Conditions:

Von Willebrand Diseases

Eligibility:

All Genders

Brief Summary

The objective of this observational study HOPSCOTcH-WILL II is to provide an accurate and detailed account of current Von Willebrand Disease (VWD) therapeutic management by collecting real-life data o...

Eligibility Criteria

Inclusion

  • Constitutional Von Willebrand Disease patient, of any severity, with or without Von Willebrand Factors inhibitors
  • Patient included in the research database BERHLINGO
  • Patient treated or not by desmopressin or Von Willebrand Factor/FVIII/by-passing agents available on the French market (at baseline)
  • Patient who agrees to participate in the HOPSCOTcH-Will II and followed in one of the 5 investigator centers

Exclusion

  • \- Patients under guardianship

Key Trial Info

Start Date :

July 7 2023

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

December 31 2024

Estimated Enrollment :

922 Patients enrolled

Trial Details

Trial ID

NCT04887324

Start Date

July 7 2023

End Date

December 31 2024

Last Update

March 30 2025

Active Locations (5)

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Page 1 of 2 (5 locations)

1

CHU Angers

Angers, France

2

CHR de Brest

Brest, France

3

CH Le Mans

Le Mans, France

4

CHU de Nantes

Nantes, France