Child and Adolescent Registry for Narcolepsy CATNAP: Narcolepsy Assessment Partnership for Pediatric Patients

What this Trial Is About

Researchers are working to better understand narcolepsy in children and adolescents by collecting detailed information about the disease through a patient registry called CATNAP. This registry aims to track the natural history of pediatric narcolepsy, describe how the condition presents and is diagnosed, and study treatment practices and outcomes over a period of up to 4 years. The study involves multiple active clinical sites as well as a virtual site that allows participation from anywhere in the United States. The study does not involve specific treatments but focuses on gathering comprehensive data from children and adolescents diagnosed with narcolepsy. Participants and their healthcare providers contribute information about symptoms, diagnosis, treatment regimens, and any changes in treatment over time. This registry is designed to be accessible in English and requires informed consent to participate. Participants will be followed for up to 4 years during which researchers will collect and analyze data to improve understanding of pediatric narcolepsy. The study involves completing consent forms and participating in registry activities, which may include providing health information and updates over time. This long-term follow-up helps researchers learn more about how narcolepsy develops and is managed in young patients.

Child and Adolescent Registry for Participants With Narcolepsy