Status:
COMPLETED
Employment of Patients With Pseudoxanthoma Elasticum
Lead Sponsor:
University Hospital, Angers
Conditions:
Pseudoxanthoma Elasticum
Employment
Eligibility:
All Genders
18-64 years
Brief Summary
Pseudoxanthoma elasticum (PXE) is a rare, autosomal recessive genetic disease characterized by progressive calcification and fragmentation of elastic fibers in connective tissues. PXE primarily affect...
Detailed Description
This is an epidemiological, descriptive and analytical, cross-sectional, monocentric study, carried out by telephone questionnaire on the national cohort of the PXE Reference Center in the Dermatology...
Eligibility Criteria
Inclusion
- PXE
- Working age / Unemployed / Retired less than 2 years
Exclusion
- Presence of one or more physical or psychological comorbidity likely to have an impact on the career path and job retention.
- Poor understanding of the french language
- Objection to participating in research
Key Trial Info
Start Date :
April 7 2022
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
September 9 2022
Estimated Enrollment :
99 Patients enrolled
Trial Details
Trial ID
NCT05246189
Start Date
April 7 2022
End Date
September 9 2022
Last Update
February 13 2023
Active Locations (1)
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1
MARTIN Ludovic
Angers, France, 49933