Status:
RECRUITING
Data Collection of Patients With Rare Bone Diseases
Lead Sponsor:
Luca Sangiorgi
Conditions:
Skeletal Dysplasia
Eligibility:
All Genders
Brief Summary
RD-DATA is a retrospective and prospective data collection, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corre...
Detailed Description
The traditional method of collecting patient information is frequently chaotic, inconvenient and sometimes even unsafe, particularly when dealing with rare diseases. In 2020, the need to simplify the ...
Eligibility Criteria
Inclusion
- All patients affected by rare diseases with predominantly skeletal involvement
Exclusion
- Any condition unrelated to rare diseases with predominantly skeletal involvement
Key Trial Info
Start Date :
October 10 2020
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
October 9 2045
Estimated Enrollment :
1000 Patients enrolled
Trial Details
Trial ID
NCT05247645
Start Date
October 10 2020
End Date
October 9 2045
Last Update
November 20 2025
Active Locations (1)
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1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136