Status:
TERMINATED
Exploring The Role Of Palliative Care In Phase 1 Enrolled Pediatric Oncology Patients
Lead Sponsor:
St. Jude Children's Research Hospital
Conditions:
Quality of Life
Eligibility:
All Genders
18+ years
Brief Summary
This study is being conducted to learn more about the patient/family experience when opting to enroll in Phase I clinical trials and their quality of life (QOL) while receiving experimental therapy. P...
Detailed Description
Eligible Parent Research Participants (PRPs) who consent will participate in one audio recorded interview in which they are asked about 8-10 questions. The interview can be conducted in person, over t...
Eligibility Criteria
Inclusion
- Caregiver is 18 years of age or older
- Caregiver is related to the patient in one of the following ways: biological parent, stepparent, or primary legal guardian
- If more than 1 set of parents are involved in the patient's care (e.g., 2 biologic and 2 stepparents or partners) involved, the caregiver with legal decision- making responsibilities will be eligible for participation
- Caregiver is comfortable speaking and reading English
Exclusion
- Those who do not meet inclusion criteria
Key Trial Info
Start Date :
September 1 2022
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
February 18 2025
Estimated Enrollment :
31 Patients enrolled
Trial Details
Trial ID
NCT05412563
Start Date
September 1 2022
End Date
February 18 2025
Last Update
February 21 2025
Active Locations (2)
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1
National Cancer Institute/National Institutes of Health
Bethesda, Maryland, United States, 20892
2
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105