Status:
UNKNOWN
Ultrastructural Collagen Markers in Ehlers Danlos Syndromes
Lead Sponsor:
University Health Network, Toronto
Conditions:
Ehlers-Danlos Syndrome
Classical Ehlers-Danlos Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
Establishing the diagnosis of Ehlers Danlos Syndromes (EDS)/generalized hypermobility spectrum disorders (G-HSD) is often problematic for patients. The absence of a precise unifying diagnosis in patie...
Eligibility Criteria
Inclusion
- Adults aged between 18 and 60 years who can provide informed consent in English
- Able to read, speak, and comprehend English without the assistance of a translator
- Have been diagnosed with hypermobile EDS as per the 2017 EDS criteria; or with genetically confirmed classical EDS (age and sex-matched). This diagnosis is carried out by the UHN GoodHope EDS clinic routinely for all patients on the basis of clinical exam and genetic testing, if indicated.
Exclusion
- Subjects under the age of 18
- Unable to speak, read and comprehend English
- Unable to provide consent (cognitive impairment)
- Pregnant women
Key Trial Info
Start Date :
October 31 2022
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
August 1 2024
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT05429996
Start Date
October 31 2022
End Date
August 1 2024
Last Update
November 28 2023
Active Locations (1)
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1
GoodHope EDS - Toronto General Hospital
Toronto, Ontario, Canada, M5G 2C4