Status:
TERMINATED
Natural History Study of Patients With Methylmalonic Acidemia and Propionic Acidemia
Lead Sponsor:
HemoShear Therapeutics
Collaborating Sponsors:
AllStripes Research Inc.
Prometrika, LLC
Conditions:
Methylmalonic Acidemia
Propionic Acidemia
Eligibility:
All Genders
Brief Summary
The JUMP (Journey to Understand MMA and PA) Study is being conducted by HemoShear Therapeutics and AllStripes, a rare disease online research platform. JUMP is designed to accelerate understanding of ...
Eligibility Criteria
Inclusion
- Participant or participant's legal guardian must provide signed, informed eConsent/eAssent prior to releasing health records or performing any study-related procedures.
- Confirmed diagnosis of MMA or PA.
- Reside in the US, Canada, or United Kingdom and have all medical records available for abstraction.
Exclusion
- 1\. Participant or participant's legal guardian is unable to provide complete access to medical records.
Key Trial Info
Start Date :
August 27 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
October 20 2023
Estimated Enrollment :
11 Patients enrolled
Trial Details
Trial ID
NCT05438485
Start Date
August 27 2021
End Date
October 20 2023
Last Update
December 27 2023
Active Locations (3)
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1
AllStripes
San Francisco, California, United States, 94551
2
AllStripes
Remote, Remote, Canada
3
AllStripes
Remote, Remote, United Kingdom