Status:
ACTIVE_NOT_RECRUITING
SEDVasc (RaDiCo Cohort) (RaDiCo-SEDVasc)
Lead Sponsor:
Institut National de la Santé Et de la Recherche Médicale, France
Conditions:
Ehlers-Danlos Syndrome, Vascular Type
Eligibility:
All Genders
Brief Summary
The goal of this observational study is to describe the natural course of vascular Ehlers-Danlos syndrome, in particular the order of appearance of different types of complications (arterial, digestiv...
Eligibility Criteria
Inclusion
- Inclusion Criteria:
- Patients eligible for inclusion in this study have to fulfil all of the following criteria:
- Patients (adults and children) with genetically-proven vEDS (presence of a pathogenic mutation at the COL3A1 gene);
- Patients (or his/her legal guardian) who does not oppose to his/her personal data collection.
- There are no exclusion criteria for this study.
Exclusion
Key Trial Info
Start Date :
December 5 2016
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 1 2028
Estimated Enrollment :
340 Patients enrolled
Trial Details
Trial ID
NCT05976841
Start Date
December 5 2016
End Date
January 1 2028
Last Update
January 30 2025
Active Locations (17)
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1
Centre Hospitalier Universitaire Angers
Angers, France
2
Hôpital Saint-André
Bordeaux, France
3
Hôpital de la Cavale Blanche
Brest, France
4
Hôpital Côte de Nacre
Caen, France