Status:
UNKNOWN
Producing a Novel Symptom Burden Scale for People Living With Idiopathic Multicentric Castleman Disease (ISBUS)
Lead Sponsor:
RECORDATI GROUP
Collaborating Sponsors:
University of Sheffield (ScHARR)
KMC Health Care
Conditions:
Idiopathic Multicentric Castleman's Disease
Eligibility:
All Genders
18+ years
Brief Summary
Development, validation of a novel symptom burden scale to assess and quantify the burden experienced by people living with Idiopathic Multicentric Castleman Disease (iMCD).
Detailed Description
Idiopathic Multicentric Castleman Disease (iMCD) is a rare lymphoproliferative disorder associated with systemic inflammation and organ dysfunction. The condition has an unknown aetiology and diagnost...
Eligibility Criteria
Inclusion
- Diagnosis of idiopathic Multicentric Castleman Disease (iMCD)
- Adults (aged 18+ years)
- Fluent in English
Exclusion
- No diagnosis of iMCD
- Children (aged \< 18 years)
- Not able to understand or communicate in English
- People lacking the capacity to consent
Key Trial Info
Start Date :
October 1 2023
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2024
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT05995834
Start Date
October 1 2023
End Date
December 1 2024
Last Update
August 22 2023
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