Status:

RECRUITING

Juvenile Recurrent Respiratory Papillomatosis: Establishment of a French National Cohort (PRR : National Cohort " REPA ")

Lead Sponsor:

Imagine Institute

Conditions:

Juvenile Recurrent Respiratory Papillomatosis

Eligibility:

All Genders

Brief Summary

Recurrent respiratory papillomatosis (RRP) is a rare disease. However, it is the most common benign laryngeal tumor in children. To date, no epidemiological data are available in France. The aim of th...

Detailed Description

Recurrent respiratory papillomatosis (RRP) is characterized by the recurrent proliferation of multiple polypoid squamous tumors in the respiratory tract, linked to HPV infection. RRP is a rare disease...

Eligibility Criteria

Inclusion

  • Patients with juvenile PRR (disease onset before age 18)
  • Followed in the :
  • The MALO CRMR
  • One of the MALO network's CCMRs
  • One of the main correspondent centers

Exclusion

  • Patients objecting to the collection of their personal data
  • Parents of minor patients objecting to the collection of their child's personal data

Key Trial Info

Start Date :

October 1 2022

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

September 30 2032

Estimated Enrollment :

200 Patients enrolled

Trial Details

Trial ID

NCT06000527

Start Date

October 1 2022

End Date

September 30 2032

Last Update

August 21 2023

Active Locations (1)

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Page 1 of 1 (1 locations)

1

hôpital Necker Enfants malades

Paris, France, 75015

Juvenile Recurrent Respiratory Papillomatosis: Establishment of a French National Cohort (PRR : National Cohort " REPA ") | DecenTrialz