Status:

APPROVED_FOR_MARKETING

Compassionate Use of Pozelimab in Patients With CD55-Deficient Protein-Losing Enteropathy

Lead Sponsor:

Regeneron Pharmaceuticals

Conditions:

CD55-Deficient Protein-Losing Enteropathy

Eligibility:

All Genders

1+ years

Brief Summary

The program is to provide access to an experimental drug called pozelimab and to document the long-term safety of pozelimab in patients with Protein-Losing Enteropathy (PLE). CD55-deficient PLE/CHAPLE...

Eligibility Criteria

Inclusion

  • Key
  • Clinical diagnosis of CD55-deficient PLE/CHAPLE disease (based on a history of PLE), confirmed by biallelic CD55 loss-of-function mutation detected by genotype analysis (frameshift, nonsense mutations) as defined in the protocol
  • Written informed consent from parent/guardian for minor patients
  • Written assent from minor patients as appropriate (eg, above the age of 6 years or the applicable age per local regulatory requirements)
  • Key

Exclusion

  • Patients who discontinued the prior pozelimab study due to safety or lack of efficacy
  • Considered by the treating physician as inappropriate for this program for any reason as defined in the protocol
  • NOTE: Other protocol defined inclusion / exclusion criteria apply

Key Trial Info

Start Date :

Trial Type :

EXPANDED_ACCESS

End Date :

Estimated Enrollment :

Patients enrolled

Trial Details

Trial ID

NCT06003881

Last Update

November 7 2025

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