Status:
COMPLETED
Validation of a Clinical Assessment Scale Specific to Alternating Hemiplegia
Lead Sponsor:
Hospices Civils de Lyon
Conditions:
Alternating Hemiplegia
Eligibility:
All Genders
Up to 99 years
Brief Summary
Alternating Hemiplegia of Childhood (AHC) is a very rare neurological disorder of genetic origin, combining paroxysmal episodes and neurodevelopmental impairment. The disease is generally sporadic, an...
Eligibility Criteria
Inclusion
- Patient with confirmed diagnosis of AHC, unrestricted age range 0-99 years
- At least one parent and/or legal guardian who understands and speaks the national language
- Adult patients :
- Gathering of the non-opposition of the patient and/or his legal representative
- Minor patients :
- Collection of non-opposition from parents/guardians
Exclusion
- Patient's refusal to participate in the study
- Patient under court protection, unable to give consent
Key Trial Info
Start Date :
November 18 2023
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
November 19 2023
Estimated Enrollment :
17 Patients enrolled
Trial Details
Trial ID
NCT06007521
Start Date
November 18 2023
End Date
November 19 2023
Last Update
February 27 2025
Active Locations (1)
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1
Service d'Epileptologie Clinique, des Troubles du Sommeil et de Neurologie Fonctionnelle de l'Enfant
Bron, Rhone, France, 69500