Status:
RECRUITING
Integrating Palliative Care Education in Pulmonary Rehabilitation
Lead Sponsor:
Aveiro University
Collaborating Sponsors:
Centro Hospitalar do Baixo Vouga
Conditions:
Chronic Obstructive Pulmonary Disease
Interstitial Lung Disease
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
Living with chronic obstructive pulmonary disease (COPD) or interstitial lung disease (ILD) imposes enormous daily challenges, especially at advanced stages, not just to patients but also to informal ...
Detailed Description
Chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) have an overwhelming impact on individuals, society and health systems worldwide. Informal caregivers play an essentia...
Eligibility Criteria
Inclusion
- People with COPD or ILD
- diagnosis of COPD according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD) criteria or multidisciplinary diagnosis of ILD
- clinically stable in the previous month (i.e., without acute exacerbation)
Exclusion
- presense of a musculoskeletal, neurological or psychiatric condition which may limit their participation in PR
- participation in any PR program in the last 6 months
- specialist palliative care in the last 12 months
- inability to understand Portuguese
- Informal caregivers
- Inclusion Criteria:
- adults identified by the participating people with COPD or ILD as informal caregivers; for this purpose, it will be explained to people with COPD or ILD that an informal caregiver is any relative, partner, friend, neighbor, or significant other with personal relationship with them, and who provides a broad range of unpaid assistance, namely with activities of daily living (e.g., toileting, feeding and bathing) and instrumental activities of daily living (e.g., shopping, meal preparation and managing finances)
Key Trial Info
Start Date :
September 1 2023
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
June 1 2026
Estimated Enrollment :
58 Patients enrolled
Trial Details
Trial ID
NCT06046547
Start Date
September 1 2023
End Date
June 1 2026
Last Update
January 30 2024
Active Locations (1)
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1
University of Aveiro
Aveiro, Portugal, 3810-193