Status:
RECRUITING
Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers
Lead Sponsor:
Northwell Health
Collaborating Sponsors:
Patient-Centered Outcomes Research Institute
Baylor College of Medicine
Conditions:
Intellectual Disability
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partner...
Detailed Description
People with intellectual/developmental disabilities (IDD) experience alarmingly high rates of mortality, morbidity, and acute care utilization compared to those without an IDD, particularly during eme...
Eligibility Criteria
Inclusion
- Family caregivers of individuals with intellectual and/or developmental disabilities living in a community setting
- Ability to speak English or Spanish
- Access to a tablet, computer, or smartphone
Exclusion
- Speaks a language other than English or Spanish
- Does not have access to a tablet, computer, or smartphone
- Caregivers who care for individuals with intellectual and developmental disabilities who are less than 10 years of age.
- Special populations such as: fetuses, prisoners, or other institutionalized individuals
Key Trial Info
Start Date :
December 22 2023
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
April 30 2029
Estimated Enrollment :
1050 Patients enrolled
Trial Details
Trial ID
NCT06065527
Start Date
December 22 2023
End Date
April 30 2029
Last Update
January 3 2024
Active Locations (1)
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1
Cohen Children's Medical Center
New Hyde Park, New York, United States, 11040