Status:
RECRUITING
National Registry of Rare Kidney Diseases
Lead Sponsor:
UK Kidney Association
Conditions:
Adenine Phosphoribosyltransferase Deficiency
AH Amyloidosis
Eligibility:
All Genders
Brief Summary
The goal of this National Registry is to is to collect information from patients with rare kidney diseases, so that it that can be used for research. The purpose of this research is to: * Develop Cl...
Detailed Description
Background Rare diseases are arbitrarily defined as having an incidence such that they cannot be studied effectively on patient groups drawn from one or a few medical centres. A high proportion of s...
Eligibility Criteria
- Kidney Rare Disease
- Paeds and adults
- Eligibility differs for each rare disease group
- See: https://ukkidney.org/rare-renal/recruitment
Key Trial Info
Start Date :
November 6 2009
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 31 2039
Estimated Enrollment :
35000 Patients enrolled
Trial Details
Trial ID
NCT06065852
Start Date
November 6 2009
End Date
December 31 2039
Last Update
October 4 2023
Active Locations (1)
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1
Zoe Plummer
Bristol, South West, United Kingdom, BS34 7RR