Status:
NOT_YET_RECRUITING
Testing Design Thinking Methodology to Engage Hispanic and Latino Families of Autistic Children in Research.
Lead Sponsor:
Thomas Jefferson University
Collaborating Sponsors:
Patient-Centered Outcomes Research Institute
Conditions:
Autism Spectrum Disorder
Patient Engagement
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The goal of this study is to compare the level of engagement in the Hispanic and Latino parents of autistic children and culturally adapt the protocol of Ayres Sensory Integration to improve participa...
Detailed Description
Racial and ethnic minorities with autistic children experience delays in access to therapy services that can result in poorer outcomes, decreased quality of life, and increased parental and financial ...
Eligibility Criteria
Inclusion
- Autistic person:
- confirmed diagnosis of autism spectrum disorder
- Hispanic/Latino
- received therapeutic services as a child; and
- willing and able (with i.e., language and cognitive skills) to participate in the design thinking or focus group session designed to learn about the facilitator and barriers to receipt of therapeutic services.
- Parent/caregiver:
- Hispanic/Latino caregiver of an autistic child who receives or received therapeutic services such as occupational, physical, speech and language therapy
- willing to participate in the design thinking or focus group session designed to learn about the facilitator and barriers to receipt of therapeutic services.
Exclusion
- Do not meet age for autistic individual or diagnostic criteria
Key Trial Info
Start Date :
February 1 2024
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
November 30 2026
Estimated Enrollment :
186 Patients enrolled
Trial Details
Trial ID
NCT06111092
Start Date
February 1 2024
End Date
November 30 2026
Last Update
November 2 2023
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