Status:
COMPLETED
Evaluation of Patient Access to People With Cystic Fibrosis (CF) and Healthcare Professionals
Lead Sponsor:
The Leeds Teaching Hospitals NHS Trust
Collaborating Sponsors:
University of Leeds
Cystic Fibrosis Trust
Conditions:
Cystic Fibrosis
Eligibility:
All Genders
17+ years
Phase:
NA
Brief Summary
Cystic fibrosis (CF) is one of the most common inherited conditions in the United Kingdom (UK). There are 10,810 people living with CF in the UK, with median predicted survival now 47 years old. Peopl...
Detailed Description
Cystic fibrosis (CF) is one of the most common inherited conditions in the United Kingdom (UK). There are 10,810 people living with CF in the UK with median predicted survival now 47 years old. Patien...
Eligibility Criteria
Inclusion
- Currently, there are approximately 400 people with cystic fibrosis (CF) attending the Regional Leeds Adult CF Unit, St James' University Hospital, Leeds, UK, and registered on the electronic healthcare record (EHR). Of these 400 patients, 100 people with CF will be recruited.
- Inclusion criteria
- Diagnosis of CF (confirmed via genetic testing or sweat chloride tests)
- Aged 17 years and over
- Males and females
- Able to give written informed consent
- Records stored electronically on the EHR system at the Regional Leeds Adult CF Unit
- Exclusion criteria
- • Taking part in a clinical trial which prohibits patients taking part in other research
Exclusion
Key Trial Info
Start Date :
December 11 2017
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
October 7 2019
Estimated Enrollment :
102 Patients enrolled
Trial Details
Trial ID
NCT06122025
Start Date
December 11 2017
End Date
October 7 2019
Last Update
November 8 2023
Active Locations (1)
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1
Leeds Teaching Hospitals NHS Trust
Leeds, United Kingdom, LS9 7TF