Status:

COMPLETED

Preparing Surrogates of Dementia Patients Through an Advance Care Planning Intervention

Lead Sponsor:

The University of Hong Kong

Conditions:

Dementia

Eligibility:

All Genders

18+ years

Phase:

NA

Brief Summary

The goal of this clinical trial is to evaluate the effects of a nurse-facilitated post-discharge advance care planning intervention with family surrogates of dementia patients on outcomes that reflect...

Detailed Description

In order to test the ACP interventions that aim to engage surrogates' participation in ACP and improve their preparedness for decision-making rather than on documentation of advance care plans alone, ...

Eligibility Criteria

Inclusion

  • Dyads of patients with dementia admitted for an unplanned hospital admission and their family surrogate will be eligible for the study.
  • Inclusion Criteria of patients:
  • \- Patient (a) at or above the age of 60 years old, (b) with diagnosis of dementia based on DSM-5 Criteria for Major Neurocognitive Disorder and Stage 6d or above on the Functional Assessment Staging Tool (FAST), (c) residing in a residential care home that is participating in Hospital Authority Enhanced Community Geriatric Assessment Team End-of-Life (CGAT EOL) Care program and (d) has an eligible family decision-maker.
  • Exclusion Criteria of patients:
  • \- Patient with (i) prior completed advance directive, (ii) On tube feeding at the time of index admission, (iii) currently enrolled in an end-of-life care program or palliative care service, or (iv) with family members who lack consensus on the primary family surrogate decision-maker.
  • Inclusion Criteria of surrogates:
  • \- Surrogate (a) at or above the age of 18 years old, (b) identified as the patient's next of kin or legal guardian who is the 'key decision maker' in hospital records, and (c) able to provide informed consent for him/herself and the patient.

Exclusion

    Key Trial Info

    Start Date :

    June 15 2023

    Trial Type :

    INTERVENTIONAL

    Allocation :

    ACTUAL

    End Date :

    September 30 2024

    Estimated Enrollment :

    58 Patients enrolled

    Trial Details

    Trial ID

    NCT06152120

    Start Date

    June 15 2023

    End Date

    September 30 2024

    Last Update

    May 14 2025

    Active Locations (1)

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    1

    The University of Hong Kong

    Hong Kong, Hong Kong