Status:
RECRUITING
A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)
Lead Sponsor:
Fondazione IRCCS Policlinico San Matteo di Pavia
Conditions:
AL Amyloidosis
Eligibility:
All Genders
18-99 years
Brief Summary
A prospective patients' registry collecting all new cases of AL amyloidosis evaluated at referral Centers from across Europe and a sample sharing network will be created to study mechanisms of the dis...
Detailed Description
In the frame of the EUREKA Consortium, a patients' registry collecting all new cases of AL amyloidosis evaluated at referral Centers across Europe or at their satellite sites will be created, in assoc...
Eligibility Criteria
Inclusion
- diagnosis of systemic AL amyloidosis;
- treatment-naïve;
- age ≥18 years;
- ability to understand and willingness to sign an informed consent;
- planned follow-up at participating center.
Exclusion
- non-AL amyloidosis;
- previous treatment for AL amyloidosis.
Key Trial Info
Start Date :
January 1 2024
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 1 2026
Estimated Enrollment :
400 Patients enrolled
Trial Details
Trial ID
NCT06205953
Start Date
January 1 2024
End Date
June 1 2026
Last Update
November 25 2024
Active Locations (6)
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1
Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
Heidelberg, Germany
2
Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
Pavia, Italy
3
UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
Utrecht, Netherlands
4
Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
Pamplona, Spain