Status:
NOT_YET_RECRUITING
Photo-Narrative Study
Lead Sponsor:
Seattle Children's Hospital
Conditions:
Child Development Disorder
Critical Illness
Eligibility:
All Genders
3+ years
Phase:
PHASE1
PHASE2
Brief Summary
The objective of this study is to conduct a pilot randomized controlled trial (RCT) of a photo-narrative communication intervention developed by our study team with patients/parents of children with s...
Eligibility Criteria
Inclusion
- Patients
- Inclusion Criteria:
- ages 3 months-25 years
- severe neurological impairment (including congenital/chromosomal, chronic central nervous system static or progressive conditions, or child \>6 months after severe traumatic brain injury
- admitted to the pediatric ICU at Seattle Children's and with medical team permission to approach
- expected length of stay \>1 week
- life expectancy \>4 weeks
- previous discharge home
- Parents
- Inclusion Criteria:
- parent/legal guardian
- English and/or Spanish speaking (most common languages spoken at SCH making up 95% of patients and families)
- \>18 years of age
- Clinicians
- Inclusion Criteria:
- licensed physicians, fellows, residents, advanced practice nurse practitioners, nurses, or respiratory therapists
- working in the pediatric ICU at Seattle Children's Hospital
Exclusion
Key Trial Info
Start Date :
July 1 2024
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
May 30 2027
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT06208332
Start Date
July 1 2024
End Date
May 30 2027
Last Update
April 22 2024
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