Status:
RECRUITING
Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Lead Sponsor:
Assistance Publique Hopitaux De Marseille
Conditions:
Polyhandicap
Eligibility:
All Genders
35+ years
Brief Summary
The general objective of PolyAGE is to explore the life experience of familial caregivers of aging persons with polyhandicap (\>= 35 years). The investigators will question parents (objective 1) and s...
Detailed Description
Context Polyhandicap as a chronic complex disability condition, lead to a combination of profound intellectual disability and serious motor deficit, resulting in the extreme restriction of autonomy an...
Eligibility Criteria
Inclusion
- Mother or father (\>=18 years) of a with severe polyhandicap aged 35 and over at the time of inclusion
- Person (\>=18 years) having at least one parent in common with a person with a severe polyhandicap aged 35 and over at the time of inclusion
- Person agreeing to participate after having been informed of the study's objectives and procedures
Exclusion
- Parents and siblings whose inclusion criteria concerning the Persons with severe polyhandicap are not fulfilled
- Parents and siblings who refuse to participate
Key Trial Info
Start Date :
June 24 2024
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2027
Estimated Enrollment :
82 Patients enrolled
Trial Details
Trial ID
NCT06222112
Start Date
June 24 2024
End Date
December 1 2027
Last Update
December 4 2024
Active Locations (7)
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1
APHP Hôpital Marin de Hendaye
Hendaye, France
2
AP-HP Hôpitaux San Salvadour
Hyères, France
3
Fondation John Bost
La Force, France
4
Assistance Publique Des Hopitaux de Marseille
Marseille, France, 13354