Status:
RECRUITING
Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia
Lead Sponsor:
University of Texas at Austin
Collaborating Sponsors:
The Association for Frontotemporal Degeneration
Conditions:
Alzheimer Disease
Dementia
Eligibility:
All Genders
18+ years
Phase:
EARLY_PHASE1
Brief Summary
The current study aims to examine the benefits of an education/support group program for individuals with progressive aphasia (caused by various etiologies, diagnoses) and their carepartners. The curr...
Detailed Description
Two educational/support group routes will be offered: 1. Progressive aphasia (PA) educational/support group or 2. Caregiver educational support group with an implementation phase (including their par...
Eligibility Criteria
Inclusion
- All participants must:
- speak Spanish and/or English (although participants may speak other languages in addition to Spanish and/or English)
- identify as Hispanic and/or Latinx,
- or their spouse/family member with PA identifies as Hispanic and/or Latinx
- see and hear well enough to participate
- have access to a computer or mobile device with video capability
- have an internet connection
- Additional inclusion criteria for PA/ language-led dementia support group participants:
- Individuals with PA:
- Has a diagnosis of PA, or language-led dementia, and aphasia is one of the primary causes of difficulty with activities of daily living
- Aware of language difficulties and willing to discuss them
- Able to actively engage in group discussion and complete activities with minimal support
- Able to regularly attend meetings
- Willing to follow the rules of the support group for interacting with others respectfully
- Additional inclusion criteria for care partner support group plus implementation phase participants:
- Individuals with PA:
- Diagnosis of aphasia or dementia that is progressive in nature, and aphasia is one of the primary causes of difficulty with activities of daily living
- Have some ability to communicate and understand communication in order to participate in training sessions
- Are functionally able to engage in training sessions (e.g., able to maintain some attention, minimal challenging behavior that would cause disruption)
- Have a care partner who also consents to participating in the project
- Care partners:
- Self-identification as a caregiver of an individual with a diagnosis of PA or language-led dementia
- Willing to discuss caregiving for individuals with PA/ language-led dementia
- Able to regularly attend meetings
- Willing to follow the rules of the support group for interacting with others respectfully
Exclusion
- • Beyond the inclusion criteria included above, no additional exclusion criteria apply
Key Trial Info
Start Date :
May 21 2024
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
December 1 2030
Estimated Enrollment :
120 Patients enrolled
Trial Details
Trial ID
NCT06511752
Start Date
May 21 2024
End Date
December 1 2030
Last Update
March 4 2025
Active Locations (1)
Enter a location and click search to find clinical trials sorted by distance.
1
University of Texas at Austin
Austin, Texas, United States, 78702