Status:

RECRUITING

Improving PCP Advance Care Planning for People With ADRD

Lead Sponsor:

University of Pittsburgh

Collaborating Sponsors:

University of North Carolina, Chapel Hill

National Institute on Aging (NIA)

Conditions:

Alzheimer Disease

Dementia

Eligibility:

All Genders

18-99 years

Phase:

NA

Brief Summary

This study will test the Dementia Advance Care Planning (AD ACP) Toolkit intervention to usual care in facilitating goals of care (GOC) discussions between People Living with Dementia (PLwD) and prima...

Detailed Description

This project will test an advance care planning (ACP) toolkit for primary care teams caring for patients living with Alzheimer's Disease and related dementias (AD/ADRD) in a cluster randomized control...

Eligibility Criteria

Inclusion

  • Primary care team member (PCTM) eligibility:
  • Must be an MD/APP, employed at a primary care clinic within UNC HEALTH clinics with ≥60 PLwD encounters per year, who sees older adult patients, along with their associated nurses and social workers.
  • Eligibility for training with AD ACP Toolkit will include the above and the provision of care at an intervention clinic.
  • For Aim 3, only the trained intervention site primary care team members will be eligible for the implementation surveys or the interviews.
  • PLwD eligibility:
  • Must be a PLwD age 65 years or older seen by either the intervention or control sites' primary care teams' MD/APP in the 18-month intervention window for Aim 1.
  • PLwD will be eligible only after we confirm the presence of the AD/ADRD diagnosis.
  • All PLwD with a ≥50% 5-year all-cause mortality risk seen by the PCTM MD/APP over the 18-month intervention period will be eligible for the healthcare utilization analyses in Aim 2.

Exclusion

  • Primary care team member exclusion criteria:
  • We will exclude primary care team members who do not care for older adults (e.g. pediatricians or lactation nurses), are employed at geriatric specialty or dementia specialty clinics, or are without a primary care panel (e.g., only urgent care).
  • PLwD exclusion criteria:
  • Patients will be excluded if they have not been seen in the past 18 months by their primary care team, or if they do not have a diagnosis of ADRD.

Key Trial Info

Start Date :

March 19 2025

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

May 31 2027

Estimated Enrollment :

120 Patients enrolled

Trial Details

Trial ID

NCT06565169

Start Date

March 19 2025

End Date

May 31 2027

Last Update

March 28 2025

Active Locations (1)

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University of North Carolina, Chapel Hill

Chapel Hill, North Carolina, United States, 27599