Status:
NOT_YET_RECRUITING
An Evaluation of Care (Education) and Treatment Reviews for People With Learning Disabilities and Autistic People
Lead Sponsor:
Coventry and Warwickshire Partnership NHS Trust
Collaborating Sponsors:
University of Birmingham
University of East Anglia
Conditions:
Autism Spectrum Disorder
Intellectual Disabilities
Eligibility:
All Genders
5+ years
Brief Summary
Aims In this research project, we will determine whether Care (Education) and Treatment Reviews are helpful for people with learning disabilities and autistic people and their families. Background Ca...
Detailed Description
Aim To undertake an evaluation of C(E)TRs using mixed methods across four stages with five work packages with children and adults with learning disabilities and autistic children and adults across a r...
Eligibility Criteria
Inclusion
- Eligibility criteria
- Participants across all stages and work packages are eligible if they meet the following work package-specific inclusion criteria, and the work package-specific exclusion criteria do not apply. All queries about participant eligibility should be directed to the Study Manager.
- Stage 1 (Work Package 1)
- Inclusion criteria:
- A person with a learning disability, or an autistic person, or a family member or carer of an autistic person or person with a learning disability
- Having received or taken part in a C(E)TR within the last 12-months including blue-light C(E)TRs
- Aged 5 or older (i.e. eligible to attend school at Key Stage one)
- For those aged 16 years and older who lack capacity to make a decision about taking part in this research, advice indicating that they should be included from either a personal or nominate consultee
- For those aged 15 and younger, consent from the person or organisation with parental responsibility
- Exclusion criteria:
- Only having received or taken part in Independently Chaired Care (Education) and Treatment Reviews (IC(E)TRs) within the last 12-months. IC(E)TRs are only for those held within long-term segregation and are out of scope
- Aged younger than 5 years
- Stage 1 (Work Package 2)
- Inclusion criteria:
- A C(E)TR chair, clinical member, or EbE or a health or social care professional, or commissioner
- Who has taken part in a C(E)TR within the last 12-months including blue-light C(E)TRs.
- Exclusion criteria:
- 1\. Staff who have only taken part in Independently Chaired Care (Education) and Treatment Reviews (IC(E)TRs) within the last 12-months. IC(E)TRs are only for those held within long-term segregation and are out of scope
- Stage 2 (Work Package 3)
- Inclusion criteria:
- People with learning disabilities or autistic people:
- Who are due to have at least two C(E)TRs within 15-months
- Aged 5 or older (i.e. eligible to attend school at Key Stage one)
- For those aged 16 and older who lack capacity to make a decision about taking part in this research, advice indicating that they should be included from either a personal or nominate consultee
- For those aged 5 years and older, but aged 15 years or younger, consent from the person or organisation with parental responsibility
- C(E)TR panel members:
- 1\. A chair, Expert by experience or clinical member who is due to attend a C(E)TR for a person with a learning disability or an autistic person who is taking part in this research project
- Health and social care professions:
- 1\. A health and social care profession who is due to attend a C(E)TR or CPA for a person with a learning disability or an autistic person who is taking part in this research project
- Carers and family members:
- 1\. A carer or family member who is due to attend a C(E)TR or CPA for someone with a learning disability or autism who is taking part in this research project
- Exclusion criteria:
- People with learning disabilities or autistic people:
- 1\. Aged younger than 5 years.
- Stage 3 (Work Package 4)
- Inclusion criteria:
- 1\. A person with a learning disability, or an autistic person, included within the Assuring Transformation and Mental Health Services datasets.
- Exclusion criteria:
- None.
- Stage 4 (Work Package 5) N/A
Exclusion
Key Trial Info
Start Date :
April 15 2025
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
September 30 2027
Estimated Enrollment :
695 Patients enrolled
Trial Details
Trial ID
NCT06918483
Start Date
April 15 2025
End Date
September 30 2027
Last Update
April 9 2025
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