Status:

RECRUITING

Wearable Sensors to Detect Atypical Muscle Activation in Young Infants

Lead Sponsor:

Shirley Ryan AbilityLab

Collaborating Sponsors:

Ann & Robert H Lurie Children's Hospital of Chicago

Northwestern University

Conditions:

Neuromuscular Disorders

Motor Development

Eligibility:

All Genders

Up to 8 years

Brief Summary

The purpose of this study is to see if wearable sensor technology can be used to evaluate muscle activity and/or identify atypical muscle tone in infants up to 48 weeks postmenstrual age (8 weeks corr...

Eligibility Criteria

Inclusion

  • For Infants with low tone:
  • Hospitalized in the NICU
  • AND \>38 weeks post-menstrual age
  • AND abnormal normal brain imaging OR Apgar score \<7 at five minutes with umbilical cord pH (if obtained) \<7.15
  • AND 2 or more warning signs for muscle tone or posture using the HNNE short form
  • AND legal guardian able and willing to give written consent and comply with study procedures
  • For Infants with typical tone:
  • Born at 38-41 weeks of gestation
  • AND hospitalized after birth in the NICU OR well newborn nursery
  • AND infants with appropriate for gestational age birth weight
  • AND HNNE exam (short proforma) normal with no warning signs for any parameter
  • AND legal guardian able and willing to give written consent and comply with study procedures.

Exclusion

  • Infants of Both Low Tone and Typical Tone Cohorts:
  • Missing or incomplete limbs (such as from amputation or congenital limb defects).
  • Open wounds or skin breakdown on the limbs or torso.
  • Presence of known genetic syndrome or congenital anomalies requiring surgery or affecting function
  • Use of sedative medications (may include phenobarbital if level stable and therapeutic)
  • Legal guardian unable to give written consent and comply with study procedures.
  • Does not receive medical clearance from a physician to participate in the study if the individual is receiving inpatient care.

Key Trial Info

Start Date :

June 25 2025

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

May 31 2026

Estimated Enrollment :

40 Patients enrolled

Trial Details

Trial ID

NCT06970522

Start Date

June 25 2025

End Date

May 31 2026

Last Update

July 30 2025

Active Locations (2)

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Page 1 of 1 (2 locations)

1

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, United States, 60611

2

Shirley Ryan AbilityLab

Chicago, Illinois, United States, 60611