Status:
RECRUITING
Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD
Lead Sponsor:
Northwell Health
Collaborating Sponsors:
Institute for Exceptional Care
Conditions:
Intellectual and Developmental Disabilities
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The purpose of this research study is to compare the Always Uniquely Me (AUM) mobile application to regular medical care. The investigators want to know if AUM is helpful at decreasing use of restrain...
Detailed Description
PWIDD have high rates of ED use and poor quality of experience in EDs compared to the general population. Among a multistate cohort of adults with IDD, the risk of emergency department visits for adul...
Eligibility Criteria
Inclusion
- Inclusion criteria for primary participant/PWIDD (person with intellectual and/or developmental disability):
- have visited a Northwell Health Emergency Department in the last 12 months
- have a confirmed intellectual and/or developmental disability
- must be 18 years of age or older at enrollment
- have a smart phone or tablet that connects to the internet
- have a preferred language of English
Exclusion
Key Trial Info
Start Date :
September 24 2025
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
December 31 2027
Estimated Enrollment :
1500 Patients enrolled
Trial Details
Trial ID
NCT06986863
Start Date
September 24 2025
End Date
December 31 2027
Last Update
September 30 2025
Active Locations (1)
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1
Cohen Children's Medical Center
New Hyde Park, New York, United States, 11040